Up against the System : A Case Study of Young Adult Perspectives Transitioning from Pediatric Palliative Care
المؤلفون المشاركون
Jack, Susan M.
Thabane, Lehana
Cook, Karen
Siden, Harold
Browne, Gina
المصدر
العدد
المجلد 2013، العدد 2013 (31 ديسمبر/كانون الأول 2013)، ص ص. 1-10، 10ص.
الناشر
Hindawi Publishing Corporation
تاريخ النشر
2013-08-12
دولة النشر
مصر
عدد الصفحات
10
التخصصات الرئيسية
الملخص EN
Advances in pediatric care have not provided the interdisciplinary support services required by those young adults with pediatric life-threatening conditions (pedLTCs) who live beyond childhood but have limited expectations to live past early adulthood.
These young adults, the first generation to live into adulthood, face multiple challenges transitioning from a plethora of pediatric palliative services to scant adult health services.
In a case study, using an innovative bulletin board focus group, we describe the complex interplay of the health, education, and social service sectors in this transition.
Our descriptions include system deficits and strengths and the young adults’ resilience and coping strategies to overcome those deficits and move forward with their lives.
Young adults with pedLTC need knowledgeable providers, coordinated and accessible services, being respected and valued, and services and supports that promote independence.
We recommend implementation of multidisciplinary solutions that are focused on young adult priorities to ensure seamless access to resources to support these young adults’ health, educational, vocational, and social goals.
The input and voice of young adults in the development of these services are imperative to ensure that multisystem services support their needs and life goals.
نمط استشهاد جمعية علماء النفس الأمريكية (APA)
Cook, Karen& Siden, Harold& Jack, Susan M.& Thabane, Lehana& Browne, Gina. 2013. Up against the System : A Case Study of Young Adult Perspectives Transitioning from Pediatric Palliative Care. Nursing Research and Practice،Vol. 2013, no. 2013, pp.1-10.
https://search.emarefa.net/detail/BIM-460499
نمط استشهاد الجمعية الأمريكية للغات الحديثة (MLA)
Cook, Karen…[et al.]. Up against the System : A Case Study of Young Adult Perspectives Transitioning from Pediatric Palliative Care. Nursing Research and Practice No. 2013 (2013), pp.1-10.
https://search.emarefa.net/detail/BIM-460499
نمط استشهاد الجمعية الطبية الأمريكية (AMA)
Cook, Karen& Siden, Harold& Jack, Susan M.& Thabane, Lehana& Browne, Gina. Up against the System : A Case Study of Young Adult Perspectives Transitioning from Pediatric Palliative Care. Nursing Research and Practice. 2013. Vol. 2013, no. 2013, pp.1-10.
https://search.emarefa.net/detail/BIM-460499
نوع البيانات
مقالات
لغة النص
الإنجليزية
الملاحظات
Includes bibliographical references
رقم السجل
BIM-460499
قاعدة معامل التأثير والاستشهادات المرجعية العربي "ارسيف Arcif"
أضخم قاعدة بيانات عربية للاستشهادات المرجعية للمجلات العلمية المحكمة الصادرة في العالم العربي
تقوم هذه الخدمة بالتحقق من التشابه أو الانتحال في الأبحاث والمقالات العلمية والأطروحات الجامعية والكتب والأبحاث باللغة العربية، وتحديد درجة التشابه أو أصالة الأعمال البحثية وحماية ملكيتها الفكرية. تعرف اكثر