دور الجمعيات في التكفل بالأمراض النادرة في الجزائر : مرض الاعتلال العضلي نموذجا

الملخص EN

Muscular dystrophy is a neurological and muscular disease that causes atrophy or muscular weakness.Thirty genotypes of muscle dysfunction have been identified.They often occure in childhood period.Duchenne type is the most common and most severe that affects only children.Usually, children between 4 and 7 years old are affected.This disease is caused because of the lack of protein that leads to the contraction of muscles and fibers,therefore leads to muscle dysfunction that mostly causes paralysis.In the absence of accurate statistics, Algeria has declared that between 40 and 50 thousand people are infected by this genitic disease according to some interested associations in this subject, in addition to the cases that have not been declared or diagnised because of some of the outdated minds in some areas ,and some who refuse to declare about the infected people,considering that as a (Taboo) wall, especially if the infected ones are among females sex.Through this article , we try to draw the attention of the society as a whole ,and the specialists in particular about this socio-psychosmatic phenomenon,by provoking teachers and researchers and raising their interest about these groups that are suffering in silence.