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“Sometimes It’s Difficult to Have a Normal Life”: Results from a Qualitative Study Exploring Caregiver Burden in Schizophrenia
Joint Authors
Gater, Adam
Rofail, Diana
Tolley, Chloe
Marshall, Chris
Abetz-Webb, Linda
Zarit, Steven H.
Berardo, Carmen Galani
Source
Schizophrenia Research and Treatment
Issue
Vol. 2014, Issue 2014 (31 Dec. 2014), pp.1-13, 13 p.
Publisher
Hindawi Publishing Corporation
Publication Date
2014-04-03
Country of Publication
Egypt
No. of Pages
13
Main Subjects
Abstract EN
Objectives.
As a disease typified by early onset and chronic disease course, caring for a person with schizophrenia may have a significant impact on caregivers’ lives.
This study aimed to investigate the subjective experiences of caregivers of people with schizophrenia as a means of understanding “caregiver burden” in this population.
Methods.
Face-to-face qualitative interviews were conducted with a diverse sample of 19 US-English speaking caregivers of people with schizophrenia (who were at least moderately ill).
Interview transcripts were analyzed using grounded theory methods and findings used to inform the development of a preliminary conceptual model outlining caregivers’ experiences.
Results.
Findings support assertions that people with schizophrenia were largely dependent upon caregivers for the provision of care and caregivers subsequently reported lacking time for themselves and their other responsibilities (e.g., family and work).
Caregiver burden frequently manifested as detriments in physical (e.g., fatigue, sickness) and emotional well-being (e.g., depression and anxiety).
Conclusions.
Caring for a person with schizophrenia has a significant impact on the lives of informal (unpaid) caregivers and alleviating caregiver burden is critical for managing individual and societal costs.
Future research should concentrate on establishing reliable and valid means of assessing burden among caregivers of persons with schizophrenia to inform the development and evaluation of interventions for reducing this burden.
American Psychological Association (APA)
Gater, Adam& Rofail, Diana& Tolley, Chloe& Marshall, Chris& Abetz-Webb, Linda& Zarit, Steven H.…[et al.]. 2014. “Sometimes It’s Difficult to Have a Normal Life”: Results from a Qualitative Study Exploring Caregiver Burden in Schizophrenia. Schizophrenia Research and Treatment،Vol. 2014, no. 2014, pp.1-13.
https://search.emarefa.net/detail/BIM-1047471
Modern Language Association (MLA)
Gater, Adam…[et al.]. “Sometimes It’s Difficult to Have a Normal Life”: Results from a Qualitative Study Exploring Caregiver Burden in Schizophrenia. Schizophrenia Research and Treatment No. 2014 (2014), pp.1-13.
https://search.emarefa.net/detail/BIM-1047471
American Medical Association (AMA)
Gater, Adam& Rofail, Diana& Tolley, Chloe& Marshall, Chris& Abetz-Webb, Linda& Zarit, Steven H.…[et al.]. “Sometimes It’s Difficult to Have a Normal Life”: Results from a Qualitative Study Exploring Caregiver Burden in Schizophrenia. Schizophrenia Research and Treatment. 2014. Vol. 2014, no. 2014, pp.1-13.
https://search.emarefa.net/detail/BIM-1047471
Data Type
Journal Articles
Language
English
Notes
Includes bibliographical references
Record ID
BIM-1047471