Parental Reports of Stigma Associated with Child’s Disorder of Sex Development
Joint Authors
Rolston, Aimee M.
Gardner, Melissa
Vilain, Eric
Sandberg, David E.
Source
International Journal of Endocrinology
Issue
Vol. 2015, Issue 2015 (31 Dec. 2015), pp.1-15, 15 p.
Publisher
Hindawi Publishing Corporation
Publication Date
2015-03-31
Country of Publication
Egypt
No. of Pages
15
Main Subjects
Abstract EN
Disorders of sex development (DSD) are congenital conditions in which chromosomal, gonadal, or anatomic sex development is atypical.
DSD-associated stigma is purported to threaten positive psychosocial adaptation.
Parental perceptions of DSD-related stigma were assessed in 154 parents of 107 children (newborn–17 years) questionnaire comprising two scales, child-focused and parent-focused, and three subscales, perceived stigmatization, future worries, and feelings about the child’s condition.
Medical chart excerpts identified diagnoses and clinical management details.
Stigma scale scores were generally low.
Parents of children with DSD reported less stigma than parents of children with epilepsy; however, a notable proportion rated individual items in the moderate to high range.
Stigma was unrelated to child’s age or the number of DSD-related surgeries.
Child-focused stigma scores exceeded parent-focused stigma and mothers reported more stigma than fathers, with a moderate level of agreement.
Within 46,XY DSD, reported stigma was higher for children reared as girls.
In conclusion, in this first quantitative study of ongoing experiences, DSD-related stigma in childhood and adolescence, while limited in the aggregate, is reported at moderate to high levels in specific areas.
Because stigma threatens positive psychosocial adaptation, systematic screening for these concerns should be considered and, when reported, targeted for psychoeducational counseling.
American Psychological Association (APA)
Rolston, Aimee M.& Gardner, Melissa& Vilain, Eric& Sandberg, David E.. 2015. Parental Reports of Stigma Associated with Child’s Disorder of Sex Development. International Journal of Endocrinology،Vol. 2015, no. 2015, pp.1-15.
https://search.emarefa.net/detail/BIM-1065914
Modern Language Association (MLA)
Rolston, Aimee M.…[et al.]. Parental Reports of Stigma Associated with Child’s Disorder of Sex Development. International Journal of Endocrinology No. 2015 (2015), pp.1-15.
https://search.emarefa.net/detail/BIM-1065914
American Medical Association (AMA)
Rolston, Aimee M.& Gardner, Melissa& Vilain, Eric& Sandberg, David E.. Parental Reports of Stigma Associated with Child’s Disorder of Sex Development. International Journal of Endocrinology. 2015. Vol. 2015, no. 2015, pp.1-15.
https://search.emarefa.net/detail/BIM-1065914
Data Type
Journal Articles
Language
English
Notes
Includes bibliographical references
Record ID
BIM-1065914