Don’t let hemophilia slow them down

Abstract EN

At hemophilic centre in Merjan Teaching Hospital a (56) patients with severe hemophilia were investigated using a pre-structured questionnaire, were measuring mainly (4) parameters : Factor availability, academic achievement and work attendance, immediate and long term rehabilitation and participation in sport and physical activities.

Due to perennial and then subsequent shortages of replacement therapy, and lacking of immediate and long term rehabilitation measures, most of patients developed various form of chronic arthropathies and disabilities with poor school and work attendance and most of them confined to their home with no employment, and were not participated in sport or physical activities.