Recruiting for Epigenetic Research : Facilitating the Informed Consent Process
Joint Authors
Menzies, Victoria
Kinser, Patricia Anne
Jackson-Cook, Colleen
Lyon, Debra E.
Jallo, Nancy
Kelly, Debra Lynch
Source
Issue
Vol. 2013, Issue 2013 (31 Dec. 2013), pp.1-8, 8 p.
Publisher
Hindawi Publishing Corporation
Publication Date
2013-06-06
Country of Publication
Egypt
No. of Pages
8
Main Subjects
Abstract EN
Because the effects of epigenetic (gene-environment interaction) changes have been associated with numerous adverse health states, the study of epigenetic measures provides exciting research opportunities for biobehavioral scientists.
However, recruitment for studies focusing on any aspect of genetics poses challenges.
Multiple factors, including lack of knowledge regarding a research study, have been identified as barriers to recruitment.
Strengthening the informed consent process through extended discussion has been found to be effective in recruiting for research studies in general, yet there is a paucity of information that focused on such a recruitment strategy for epigenetic studies.
In this paper, we share our experiences with strategies to strengthen the informed consent process as well as provide samples of materials developed to heighten potential participants’ understanding of epigenetics, in 4 epigenetic research studies with women from diverse backgrounds experiencing a range of health issues.
The combined enrollment success rate for epigenetic studies using the process was 89% with participants representing a diverse population.
We posit that carefully developed recruitment scripts provided a foundation for improving potential participants’ understanding of the research project.
Easy to understand illustrations of the epigenetic process provided a basis for active engagement and encouraged individual questions.
American Psychological Association (APA)
Jallo, Nancy& Lyon, Debra E.& Kinser, Patricia Anne& Kelly, Debra Lynch& Menzies, Victoria& Jackson-Cook, Colleen. 2013. Recruiting for Epigenetic Research : Facilitating the Informed Consent Process. Nursing Research and Practice،Vol. 2013, no. 2013, pp.1-8.
https://search.emarefa.net/detail/BIM-509517
Modern Language Association (MLA)
Jallo, Nancy…[et al.]. Recruiting for Epigenetic Research : Facilitating the Informed Consent Process. Nursing Research and Practice No. 2013 (2013), pp.1-8.
https://search.emarefa.net/detail/BIM-509517
American Medical Association (AMA)
Jallo, Nancy& Lyon, Debra E.& Kinser, Patricia Anne& Kelly, Debra Lynch& Menzies, Victoria& Jackson-Cook, Colleen. Recruiting for Epigenetic Research : Facilitating the Informed Consent Process. Nursing Research and Practice. 2013. Vol. 2013, no. 2013, pp.1-8.
https://search.emarefa.net/detail/BIM-509517
Data Type
Journal Articles
Language
English
Notes
Includes bibliographical references
Record ID
BIM-509517