The impact of pediatric nephrotic syndrome on parents’ health-related quality of life and family functioning : an assessment made by the PedsQL 4.0 family impact module
Joint Authors
Mishra, Kirtisudha
Ramachandran, Smita
Firdaus, Saima
Rath, Bimbadhar
Source
Saudi Journal of Kidney Diseases and Transplantation
Issue
Vol. 26, Issue 2 (30 Apr. 2015), pp.285-292, 8 p.
Publisher
Saudi Center for Organ Transplantation
Publication Date
2015-04-30
Country of Publication
Saudi Arabia
No. of Pages
8
Main Subjects
Topics
Abstract EN
The multi-dimensional impact on the quality of life (QOL) of families of children with the nephrotic syndrome (NS) has not been studied sufficiently in the literature.
We aimed to study this aspect and the predictors of poor QOL among Indian families having children with NS.
A cross-sectional study was conducted to compare the parents of children with chronic NS on treatment for at least one year with parents of a matched healthy control group.
The parents of both groups were asked to complete the standard self-administered multi-dimensional questionnaire of Pediatric Quality of Life Inventory 4 (PedsQLTM) Family Impact Module (FIM).
Descriptive and analytical statistics were performed to compare scores between the two groups.
Possible predictors of poor outcome in each of the summary scales among the cases were assessed by both univariate and multivariate analysis.
The parents of 61 cases and 72 controls completed the PedsQLTM FIM questionnaire.
The scores in each of the categories, namely FIM Total Scale Score, Parent HRQOL Summary Score, Family Functioning Summary Score and eight individual domains, were found to be significantly higher among controls.
Female gender of the affected child was an independent risk factor for poor Family Functioning Summary Score.
Also, presence of serious complications during the course of the disease independently predicted poor Total FIM and Parent HRQOL Summary Scores.
Even a relatively benign and potentially curable chronic disorder in children, like the NS, can disturb the QOL of parents in multiple domains of functioning.
American Psychological Association (APA)
Mishra, Kirtisudha& Ramachandran, Smita& Firdaus, Saima& Rath, Bimbadhar. 2015. The impact of pediatric nephrotic syndrome on parents’ health-related quality of life and family functioning : an assessment made by the PedsQL 4.0 family impact module. Saudi Journal of Kidney Diseases and Transplantation،Vol. 26, no. 2, pp.285-292.
https://search.emarefa.net/detail/BIM-532495
Modern Language Association (MLA)
Mishra, Kirtisudha…[et al.]. The impact of pediatric nephrotic syndrome on parents’ health-related quality of life and family functioning : an assessment made by the PedsQL 4.0 family impact module. Saudi Journal of Kidney Diseases and Transplantation Vol. 26, no. 2 (2015), pp.285-292.
https://search.emarefa.net/detail/BIM-532495
American Medical Association (AMA)
Mishra, Kirtisudha& Ramachandran, Smita& Firdaus, Saima& Rath, Bimbadhar. The impact of pediatric nephrotic syndrome on parents’ health-related quality of life and family functioning : an assessment made by the PedsQL 4.0 family impact module. Saudi Journal of Kidney Diseases and Transplantation. 2015. Vol. 26, no. 2, pp.285-292.
https://search.emarefa.net/detail/BIM-532495
Data Type
Journal Articles
Language
English
Notes
Includes bibliographical references : p. 291-292
Record ID
BIM-532495