What Do Parents Think about Chromosomal Microarray Testing? A Qualitative Report from Parents of Children with Autism Spectrum Disorders
المؤلفون المشاركون
Xu, Lei
Mitchell, Linda Crane
Richman, Alice R.
Clawson, Kaitlyn
المصدر
العدد
المجلد 2016، العدد 2016 (31 ديسمبر/كانون الأول 2016)، ص ص. 1-9، 9ص.
الناشر
Hindawi Publishing Corporation
تاريخ النشر
2016-06-20
دولة النشر
مصر
عدد الصفحات
9
التخصصات الرئيسية
الملخص EN
Background.
Chromosomal Microarray Analysis (CMA) is increasingly utilized to detect copy number variants among children and families affected with autism spectrum disorders (ASD).
However, CMA is controversial due to possible ambiguous test findings, uncertain clinical implications, and other social and legal issues related to the test.
Methods.
Participants were parents of children with ASD residing in the North Eastern region of North Carolina, USA.
We conducted individual, face-to-face interviews with 45 parents and inquired about their perceptions of CMA.
Results.
Three major themes dominated parents’ perceptions of CMA.
None of the parents had ever heard of the test before and the majority of the parents postulated positive attitudes toward the test.
Parents’ motivations in undergoing the test were attributed to finding a potential cause of ASD, to being better prepared for having another affected child, and to helping with future reproductive decisions.
Perceived barriers included the cost of testing, risk/pain of CMA testing, and fear of test results.
Conclusion.
This study contributes to the understanding of psychosocial aspects and cultural influences towards adoption of genetic testing for ASD in clinical practice.
Genetic education can aid informed decision-making related to CMA genetic testing among parents of children with ASD.
نمط استشهاد جمعية علماء النفس الأمريكية (APA)
Xu, Lei& Mitchell, Linda Crane& Richman, Alice R.& Clawson, Kaitlyn. 2016. What Do Parents Think about Chromosomal Microarray Testing? A Qualitative Report from Parents of Children with Autism Spectrum Disorders. Autism Research and Treatment،Vol. 2016, no. 2016, pp.1-9.
https://search.emarefa.net/detail/BIM-1096766
نمط استشهاد الجمعية الأمريكية للغات الحديثة (MLA)
Xu, Lei…[et al.]. What Do Parents Think about Chromosomal Microarray Testing? A Qualitative Report from Parents of Children with Autism Spectrum Disorders. Autism Research and Treatment No. 2016 (2016), pp.1-9.
https://search.emarefa.net/detail/BIM-1096766
نمط استشهاد الجمعية الطبية الأمريكية (AMA)
Xu, Lei& Mitchell, Linda Crane& Richman, Alice R.& Clawson, Kaitlyn. What Do Parents Think about Chromosomal Microarray Testing? A Qualitative Report from Parents of Children with Autism Spectrum Disorders. Autism Research and Treatment. 2016. Vol. 2016, no. 2016, pp.1-9.
https://search.emarefa.net/detail/BIM-1096766
نوع البيانات
مقالات
لغة النص
الإنجليزية
الملاحظات
Includes bibliographical references
رقم السجل
BIM-1096766
قاعدة معامل التأثير والاستشهادات المرجعية العربي "ارسيف Arcif"
أضخم قاعدة بيانات عربية للاستشهادات المرجعية للمجلات العلمية المحكمة الصادرة في العالم العربي
تقوم هذه الخدمة بالتحقق من التشابه أو الانتحال في الأبحاث والمقالات العلمية والأطروحات الجامعية والكتب والأبحاث باللغة العربية، وتحديد درجة التشابه أو أصالة الأعمال البحثية وحماية ملكيتها الفكرية. تعرف اكثر