Assessment of health quality of life upon school age children (6-12)‎ with thalassemia at thalassemia centre in Ibn-Baladi Hospital

الملخص EN

Objectives : assess the QOL of thalassemia school age children and relation ship with some variables.

Methodology : Non-probability (purposive) sample of (40) patient school age children with thalassemia hospitalized for management were selected.

The questionnaire format designed for the purpose of the study, two instrument were used include : sample demographic characteristics QOL domain of thalassemia school children.

Data were analyzed by using frequencies, percentage.

And multi-regression analysis.

Results : The result of the study indicated that the majority of the sample was the age group (9-11) and (6-8) and 75 % of the subject of the study have (1-2) affected brothers.

Regarding the age of onset shows that the majority of thalassemia have the disease between the (6-10) month of there life, 57.5 % of the patient suffer from thalassemia major and 67.5 % had family history.

Over half (72.5 %) of patient feel tired when he or she gait due to sign and symptom of there disease, majority of the sample 87.5 % depended on blood transfusion and 85 % of thalassemia patient need to desferal.

While the majority of the patient 85 % feel bad because can't do what their friend doing and 70 % of patient felt comfort from other supported (nurse, doctor) emotional and psychologically in the center and provide what they need.

Recommendation : The study recommend further studies should consider more generic measure of psychological and social functioning related QOL.

In addition need for Educational program for those patients should be designed to help them live a better life with hemophilia disease, the patients emphasize the importance of how to cope with their problems for a good QOL.