Facets of Parenting a Child with Hypoplastic Left Heart Syndrome
Joint Authors
Rempel, Gwen R.
Rogers, Laura G.
Ravindran, Vinitha
Magill-Evans, Joyce
Source
Issue
Vol. 2012, Issue 2012 (31 Dec. 2012), pp.1-9, 9 p.
Publisher
Hindawi Publishing Corporation
Publication Date
2012-04-02
Country of Publication
Egypt
No. of Pages
9
Main Subjects
Abstract EN
The purpose of the study was to conceptualize the needs of parents of young children with hypoplastic left heart syndrome (HLHS) to provide a theoretical framework to inform the development of future parent interventions.
Participants were parents and grandparents (n=53) of 15 young children who had undergone the Sano surgical approach for HLHS.
Analysis of recorded and transcribed single interviews with each participant was done as directed by interpretive description methodology.
A model of five facets of parenting was conceptualized.
These included survival parenting, “hands-off” parenting, expert parenting, uncertain parenting, and supported parenting.
The facets of parenting delineated through this study provide a theoretical framework that can be used to guide the development and evaluation of interventions for parents of children with complex congenital heart disease and potentially other life-threatening conditions.
Each facet constitutes a critical component for educational or psychosocial intervention for parents.
American Psychological Association (APA)
Rempel, Gwen R.& Rogers, Laura G.& Ravindran, Vinitha& Magill-Evans, Joyce. 2012. Facets of Parenting a Child with Hypoplastic Left Heart Syndrome. Nursing Research and Practice،Vol. 2012, no. 2012, pp.1-9.
https://search.emarefa.net/detail/BIM-1002572
Modern Language Association (MLA)
Rempel, Gwen R.…[et al.]. Facets of Parenting a Child with Hypoplastic Left Heart Syndrome. Nursing Research and Practice No. 2012 (Dec. 2012), pp.1-9.
https://search.emarefa.net/detail/BIM-1002572
American Medical Association (AMA)
Rempel, Gwen R.& Rogers, Laura G.& Ravindran, Vinitha& Magill-Evans, Joyce. Facets of Parenting a Child with Hypoplastic Left Heart Syndrome. Nursing Research and Practice. 2012. Vol. 2012, no. 2012, pp.1-9.
https://search.emarefa.net/detail/BIM-1002572
Data Type
Journal Articles
Language
English
Notes
Includes bibliographical references
Record ID
BIM-1002572