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The Impact of Migrations on the Health Services for Rare Diseases in Europe: The Example of Haemoglobin Disorders
Joint Authors
Angastiniotis, Michalis
Vives Corrons, Joan-Lluis
Soteriades, Elpidoforos S.
Eleftheriou, Androulla
Source
Issue
Vol. 2013, Issue 2013 (31 Dec. 2013), pp.1-10, 10 p.
Publisher
Hindawi Publishing Corporation
Publication Date
2013-03-18
Country of Publication
Egypt
No. of Pages
10
Main Subjects
Medicine
Information Technology and Computer Science
Abstract EN
Migration from different parts of the world to several European countries leads to the introduction of haemoglobinopathy genes into the population, which creates several demanding needs for prevention and treatment services for Hb disorders.
In this paper we examined the degree to which European health services have responded to such challenges and in particular to health services necessary to address the needs of patients with thalassaemia and sickle cell disease (SCD).
Information on available services was obtained from international organizations, collaborated European project, and the Thalassaemia International Federation (TIF) Databases, which include information from published surveys, registries, field trips, and delegation visits to countries and regions by expert advisors, local associations, and other collaborators’ reports.
Results show that countries with traditional strong prevention and treatment programs are well prepared to face the above challenges, while others are urgently needed to address these problems in a systematic way.
The Thalassaemia International Federation (TIF) is committed to monitor the progress, raise awareness, and support the promotion of more immigrant-oriented health policies to ensure their integration in society and their access to appropriate, adequate, and timely health services.
American Psychological Association (APA)
Angastiniotis, Michalis& Vives Corrons, Joan-Lluis& Soteriades, Elpidoforos S.& Eleftheriou, Androulla. 2013. The Impact of Migrations on the Health Services for Rare Diseases in Europe: The Example of Haemoglobin Disorders. The Scientific World Journal،Vol. 2013, no. 2013, pp.1-10.
https://search.emarefa.net/detail/BIM-1033244
Modern Language Association (MLA)
Angastiniotis, Michalis…[et al.]. The Impact of Migrations on the Health Services for Rare Diseases in Europe: The Example of Haemoglobin Disorders. The Scientific World Journal No. 2013 (2013), pp.1-10.
https://search.emarefa.net/detail/BIM-1033244
American Medical Association (AMA)
Angastiniotis, Michalis& Vives Corrons, Joan-Lluis& Soteriades, Elpidoforos S.& Eleftheriou, Androulla. The Impact of Migrations on the Health Services for Rare Diseases in Europe: The Example of Haemoglobin Disorders. The Scientific World Journal. 2013. Vol. 2013, no. 2013, pp.1-10.
https://search.emarefa.net/detail/BIM-1033244
Data Type
Journal Articles
Language
English
Notes
Includes bibliographical references
Record ID
BIM-1033244