Understanding the Burden on Caregivers of People with Parkinson’s: A Scoping Review of the Literature

Abstract EN

Caregivers are healthcare assets because they care for patients at home; however, when clinicians focus solely on patients, caregivers’ needs may not be recognized.

The purpose of this scoping literature review is to identify the burdens on caregivers of people with Parkinson’s disease.

CINAHL and PubMed databases were searched to locate thirteen original articles, one systematic review, and one meta-analysis within the last five years that highlighted caregivers’ burdens.

Results indicate the need to identify practical interventions that decrease caregivers’ physical, psychological, and socioeconomic burdens.

Correlates of Parkinson’s caregiver burdens are not clearly available.

Caregivers’ contextual demographic information is missing, as is an understanding of how caregivers negotiate day-to-day caregiving activities.

Gaps exist about how caregivers reconcile multiple medications and manage rehabilitation needs of the patient at home.

A recommendation for practice is a systematic evaluation of the caregivers’ capacity at the time of clinic visit.