Persons with Epilepsy: Between Social Inclusion and Marginalisation
Joint Authors
Zaletel, Marjan
Mlinar, Simona
Petek, Davorina
Cotič, Živa
Mencin Čeplak, Metka
Source
Issue
Vol. 2016, Issue 2016 (31 Dec. 2016), pp.1-10, 10 p.
Publisher
Hindawi Publishing Corporation
Publication Date
2016-04-26
Country of Publication
Egypt
No. of Pages
10
Main Subjects
Abstract EN
Background.
Epilepsy is a chronic neurological disorder that can lead to complex psychosocial consequences.
Epilepsy can change the social status of persons with epilepsy (PWE) and has an effect on their social inclusion as well as their perception of social inclusion.
This study aims to explore subjective experiences with social inclusion of PWE in Slovenia.
Methods.
This study takes a qualitative approach.
Eleven semistructured interviews were conducted with eleven participants.
Interviews were analysed using thematic analysis.
Results.
Epilepsy has physical, emotional, and social consequences.
Physical consequences of epilepsy are mainly tiredness and exhaustion following an epileptic episode, frequently accompanied by headaches.
Emotional consequences are different forms of fear.
The main social consequence identified is a negative effect on PWE’s social network, which leads to (self-)isolation and social distrust.
Conclusion.
PWE experience of social inclusion depends on various psychosocial factors and differs from person to person.
The consequences of epilepsy are shown in PWE social contacts and their sense of social inclusion and autonomy.
American Psychological Association (APA)
Mlinar, Simona& Petek, Davorina& Cotič, Živa& Mencin Čeplak, Metka& Zaletel, Marjan. 2016. Persons with Epilepsy: Between Social Inclusion and Marginalisation. Behavioural Neurology،Vol. 2016, no. 2016, pp.1-10.
https://search.emarefa.net/detail/BIM-1099433
Modern Language Association (MLA)
Mlinar, Simona…[et al.]. Persons with Epilepsy: Between Social Inclusion and Marginalisation. Behavioural Neurology No. 2016 (2016), pp.1-10.
https://search.emarefa.net/detail/BIM-1099433
American Medical Association (AMA)
Mlinar, Simona& Petek, Davorina& Cotič, Živa& Mencin Čeplak, Metka& Zaletel, Marjan. Persons with Epilepsy: Between Social Inclusion and Marginalisation. Behavioural Neurology. 2016. Vol. 2016, no. 2016, pp.1-10.
https://search.emarefa.net/detail/BIM-1099433
Data Type
Journal Articles
Language
English
Notes
Includes bibliographical references
Record ID
BIM-1099433