EVASEP: A Noninterventional Study Describing the Perception of Neurologists, Patients, and Caregivers on Caregivers’ Role in the Support of Patients Suffering from Multiple Sclerosis Treated with Subcutaneous Interferon Beta 1a
Joint Authors
Donzé, Cécile
Lenne, Bruno
Jean Deleglise, Anne-Sophie
Kempf, Christian
Bellili, Yasmine
Hautecoeur, Patrick
Source
Multiple Sclerosis International
Issue
Vol. 2016, Issue 2016 (31 Dec. 2016), pp.1-10, 10 p.
Publisher
Hindawi Publishing Corporation
Publication Date
2016-08-01
Country of Publication
Egypt
No. of Pages
10
Main Subjects
Abstract EN
Background.
The perception of the role of caregivers for people with multiple sclerosis (MS) is important but poorly studied, particularly in patients with low levels of disability.
Objectives.
To describe the perceptions of the role of caregivers from the perspective of the caregiver, the patient, and neurologists.
Methods.
This observational study was conducted in France on patients with relapsing remitting MS treated with subcutaneous (SC) interferon-β-1a (IFN-β-1a) for more than 24 months.
Results.
Caregiver, patients, and neurologists all considered providing moral support and fighting against the disease as the most important role of the care provider.
Moral support was considered significantly more important by caregivers than the patients and neurologists ( p = 0.002 ) and caregivers considered their role in helping patients to fight disease more important than did the neurologists ( p = 0.006 ).
Knowledge of disease and available treatments were less important among support providers than patients ( p = 0.007 and p = 0.001 ).
Conclusion.
There are many unmet needs in the perception of the role of caregivers for people with MS which need to be addressed to deliver the most effective care package for patients and to support the needs of the support provider.
American Psychological Association (APA)
Donzé, Cécile& Lenne, Bruno& Jean Deleglise, Anne-Sophie& Kempf, Christian& Bellili, Yasmine& Hautecoeur, Patrick. 2016. EVASEP: A Noninterventional Study Describing the Perception of Neurologists, Patients, and Caregivers on Caregivers’ Role in the Support of Patients Suffering from Multiple Sclerosis Treated with Subcutaneous Interferon Beta 1a. Multiple Sclerosis International،Vol. 2016, no. 2016, pp.1-10.
https://search.emarefa.net/detail/BIM-1112950
Modern Language Association (MLA)
Donzé, Cécile…[et al.]. EVASEP: A Noninterventional Study Describing the Perception of Neurologists, Patients, and Caregivers on Caregivers’ Role in the Support of Patients Suffering from Multiple Sclerosis Treated with Subcutaneous Interferon Beta 1a. Multiple Sclerosis International No. 2016 (2016), pp.1-10.
https://search.emarefa.net/detail/BIM-1112950
American Medical Association (AMA)
Donzé, Cécile& Lenne, Bruno& Jean Deleglise, Anne-Sophie& Kempf, Christian& Bellili, Yasmine& Hautecoeur, Patrick. EVASEP: A Noninterventional Study Describing the Perception of Neurologists, Patients, and Caregivers on Caregivers’ Role in the Support of Patients Suffering from Multiple Sclerosis Treated with Subcutaneous Interferon Beta 1a. Multiple Sclerosis International. 2016. Vol. 2016, no. 2016, pp.1-10.
https://search.emarefa.net/detail/BIM-1112950
Data Type
Journal Articles
Language
English
Notes
Includes bibliographical references
Record ID
BIM-1112950