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Developing a Sense of Knowing and Acquiring the Skills to Manage Pain in Children with Profound Cognitive Impairments: Mothers’ Perspectives
Joint Authors
Carter, Bernie
Simons, Joan
Bray, Lucy
Arnott, Janine
Source
Issue
Vol. 2017, Issue 2017 (31 Dec. 2017), pp.1-11, 11 p.
Publisher
Hindawi Publishing Corporation
Publication Date
2017-03-26
Country of Publication
Egypt
No. of Pages
11
Main Subjects
Abstract EN
Children with profound cognitive impairment (PCI) are a heterogenous group who often experience frequent and persistent pain.
Those people closest to the child are key to assessing their pain.
This mixed method study aimed to explore how parents acquire knowledge and skills in assessing and managing their child’s pain.
Eight mothers completed a weekly pain diary and were interviewed at weeks 1 and 8.
Qualitative data were analysed using thematic analysis and the quantitative data using descriptive statistics.
Mothers talked of learning through a system of trial and error (“learning to get on with it”); this was accomplished through “learning to know without a rule book or guide”; “learning to be a convincing advocate”; and “learning to endure and to get things right.” Experiential and reflective learning was evident in the way the mothers developed a “sense of knowing” their child’s pain.
They drew on embodied knowledge of how their child usually expressed and responded to pain to help make pain-related decisions.
Health professionals need to support mothers/parents to develop their knowledge and skills and to gain confidence in pain assessment and they should recognise and act on the mothers’ concerns.
American Psychological Association (APA)
Carter, Bernie& Arnott, Janine& Simons, Joan& Bray, Lucy. 2017. Developing a Sense of Knowing and Acquiring the Skills to Manage Pain in Children with Profound Cognitive Impairments: Mothers’ Perspectives. Pain Research and Management،Vol. 2017, no. 2017, pp.1-11.
https://search.emarefa.net/detail/BIM-1197358
Modern Language Association (MLA)
Carter, Bernie…[et al.]. Developing a Sense of Knowing and Acquiring the Skills to Manage Pain in Children with Profound Cognitive Impairments: Mothers’ Perspectives. Pain Research and Management No. 2017 (2017), pp.1-11.
https://search.emarefa.net/detail/BIM-1197358
American Medical Association (AMA)
Carter, Bernie& Arnott, Janine& Simons, Joan& Bray, Lucy. Developing a Sense of Knowing and Acquiring the Skills to Manage Pain in Children with Profound Cognitive Impairments: Mothers’ Perspectives. Pain Research and Management. 2017. Vol. 2017, no. 2017, pp.1-11.
https://search.emarefa.net/detail/BIM-1197358
Data Type
Journal Articles
Language
English
Notes
Includes bibliographical references
Record ID
BIM-1197358