Saturdays-in-Motion: Education and Empowerment through an Interdisciplinary Team Approach for Parkinson’s Disease in Cali-Colombia
Joint Authors
Navarro, Andrés
Muñoz, Beatriz E.
Quintana-Peña, Valentina
Gonzalez, Maria C.
Valderrama, Jaime A.
Castaño-Pino, Yor Jaggy
Rincón, Domiciano
Orozco, Jorge L.
Source
Issue
Vol. 2020, Issue 2020 (31 Dec. 2020), pp.1-9, 9 p.
Publisher
Hindawi Publishing Corporation
Publication Date
2020-07-15
Country of Publication
Egypt
No. of Pages
9
Main Subjects
Abstract EN
Introduction.
Parkinson’s disease (PD) is one of the most prevalent age-related neurodegenerative disorders.
The progression of PD produces an important disease burden in patients due to functional impairment, which also has repercussions on caregivers.
In addition, it has become a challenge for health systems, especially in developing countries, which have limited resources.
Multidisciplinary teams with a community approach have proved effective in high-income countries; however, there is no reported literature in low- and middle-income countries about this kind of initiative.
Objective.
This paper aims to document the experience of patients, caregivers, and experts in a community approach as an innovative model in a middle-income country.
Methods.
A quantitative descriptive research was conducted.
The selection criteria were having a PD diagnosis, attending with a caregiver to Saturdays in Motion (SIM), or being a clinical expert invited to SIM.
PD patients and their caregivers answered three surveys on their points of view with respect to SIM: SIM and their quality of life (QoL) and PDQ-39 and Zarit, whereas clinical experts completed two questions related to the SIM program.
Descriptive statistics were used to summarize the results of the surveys and clinical tests.
Results.
Forty-eight, twenty-four, and twenty-one subjects answered surveys one, two, and three, respectively.
In total, four clinical experts were interviewed.
87.9% of the patients consider that SIM activities improved their QoL.
The most affected areas in PDQ-39 were those related to the social area.
Around 66.6% of the caregivers reported a mild burden on Zarit and think that SIM enhances the PD patient’s QoL.
Clinical experts highlighted the sense of community and empathy.
Conclusion.
Our preliminary experience shows a multidisciplinary model with a community approach which redefines the traditional relationship between patients, caregivers, and clinical experts.
This aim of this initiative is that education and empowerment patients and caregivers reach a better perception of QoL.
American Psychological Association (APA)
Muñoz, Beatriz E.& Quintana-Peña, Valentina& Gonzalez, Maria C.& Valderrama, Jaime A.& Castaño-Pino, Yor Jaggy& Rincón, Domiciano…[et al.]. 2020. Saturdays-in-Motion: Education and Empowerment through an Interdisciplinary Team Approach for Parkinson’s Disease in Cali-Colombia. Parkinson’s Disease،Vol. 2020, no. 2020, pp.1-9.
https://search.emarefa.net/detail/BIM-1206415
Modern Language Association (MLA)
Muñoz, Beatriz E.…[et al.]. Saturdays-in-Motion: Education and Empowerment through an Interdisciplinary Team Approach for Parkinson’s Disease in Cali-Colombia. Parkinson’s Disease No. 2020 (2020), pp.1-9.
https://search.emarefa.net/detail/BIM-1206415
American Medical Association (AMA)
Muñoz, Beatriz E.& Quintana-Peña, Valentina& Gonzalez, Maria C.& Valderrama, Jaime A.& Castaño-Pino, Yor Jaggy& Rincón, Domiciano…[et al.]. Saturdays-in-Motion: Education and Empowerment through an Interdisciplinary Team Approach for Parkinson’s Disease in Cali-Colombia. Parkinson’s Disease. 2020. Vol. 2020, no. 2020, pp.1-9.
https://search.emarefa.net/detail/BIM-1206415
Data Type
Journal Articles
Language
English
Notes
Includes bibliographical references
Record ID
BIM-1206415