The Impact of Living with Parkinson’s Disease: Balancing within a Web of Needs and Demands
Joint Authors
Westergren, Albert
Hagell, Peter
Sjödahl Hammarlund, Catharina
Åström, Ingrid
Edberg, Anna-Karin
Source
Issue
Vol. 2018, Issue 2018 (31 Dec. 2018), pp.1-8, 8 p.
Publisher
Hindawi Publishing Corporation
Publication Date
2018-07-29
Country of Publication
Egypt
No. of Pages
8
Main Subjects
Abstract EN
This study explores the impact of living with Parkinson’s disease (PD).
Nineteen persons (11 women) aged 55–84 diagnosed with PD 3–27 years ago participated.
Data were collected through semistructured interviews, which were recorded, transcribed verbatim, and analysed by qualitative content analysis.
Four categories represented the impact of living with PD: “Changed prerequisites for managing day-to-day demands,” “Loss of identity and dignity,” “Compromised social participation,” and “The use of practical and psychological strategies.” There was a shift from an internal to an external locus of control in managing, control, competence, relatedness, and autonomy.
According to self-determination theory, a shift towards extrinsically motivated behaviours may occur when these basic needs are thwarted, leading to compensatory strategies or needs substitutes with negative consequences on health and well-being.
We suggest a needs-based approach as an important starting point to better understand the consequences of living with PD and to explore the means for people with PD to acquire an improved quality of life on their own terms.
In conclusion, our findings suggest for a shift in focus, from a biomedical to a needs-based approach to understand the impact of living with PD and facilitate more person-centred care and person-centred outcome measurement.
American Psychological Association (APA)
Sjödahl Hammarlund, Catharina& Westergren, Albert& Åström, Ingrid& Edberg, Anna-Karin& Hagell, Peter. 2018. The Impact of Living with Parkinson’s Disease: Balancing within a Web of Needs and Demands. Parkinson’s Disease،Vol. 2018, no. 2018, pp.1-8.
https://search.emarefa.net/detail/BIM-1212467
Modern Language Association (MLA)
Sjödahl Hammarlund, Catharina…[et al.]. The Impact of Living with Parkinson’s Disease: Balancing within a Web of Needs and Demands. Parkinson’s Disease No. 2018 (2018), pp.1-8.
https://search.emarefa.net/detail/BIM-1212467
American Medical Association (AMA)
Sjödahl Hammarlund, Catharina& Westergren, Albert& Åström, Ingrid& Edberg, Anna-Karin& Hagell, Peter. The Impact of Living with Parkinson’s Disease: Balancing within a Web of Needs and Demands. Parkinson’s Disease. 2018. Vol. 2018, no. 2018, pp.1-8.
https://search.emarefa.net/detail/BIM-1212467
Data Type
Journal Articles
Language
English
Notes
Includes bibliographical references
Record ID
BIM-1212467