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Accuracy of Self-Reported Breast Cancer Information among Women from the Ontario Site of the Breast Cancer Family Registry
Joint Authors
Glendon, Gord
Weerasooriya, Nayana
Andrulis, Irene L.
Barisic, Andriana
Knight, Julia A.
Source
Journal of Cancer Epidemiology
Issue
Vol. 2012, Issue 2012 (31 Dec. 2012), pp.1-11, 11 p.
Publisher
Hindawi Publishing Corporation
Publication Date
2012-12-17
Country of Publication
Egypt
No. of Pages
11
Main Subjects
Abstract EN
Obtaining complete medical record information can be challenging and expensive in breast cancer studies.
The current literature is limited with respect to the accuracy of self-report and factors that may influence this.
We assessed the agreement between self-reported and medical record breast cancer information among women from the Ontario site of the Breast Cancer Family Registry.
Women aged 20–69 years diagnosed with incident breast cancer 1996–1998 were identified from the Ontario Cancer Registry, sampled on age and family history.
We calculated kappa statistics, proportion correct, sensitivity, specificity, and positive and negative predictive values and conducted unconditional logistic regression to examine whether characteristics of the women influenced agreement.
The proportions of women who correctly reported having received a broad category of therapy (hormone therapy, chemotherapy, radiation, or surgery) as well as sensitivity and specificity were above 90%, and the kappa statistics were above 0.80.
The specific type of hormonal or chemotherapy was reported with low-to-moderate agreement.
Aside from recurrence, no factors were consistently associated with agreement.
Thus, most women were able to accurately report broad categories of treatment but not necessarily specific treatment types.
The finding of this study can aid researchers in the use and design of self-administered treatment questionnaires.
American Psychological Association (APA)
Barisic, Andriana& Glendon, Gord& Weerasooriya, Nayana& Andrulis, Irene L.& Knight, Julia A.. 2012. Accuracy of Self-Reported Breast Cancer Information among Women from the Ontario Site of the Breast Cancer Family Registry. Journal of Cancer Epidemiology،Vol. 2012, no. 2012, pp.1-11.
https://search.emarefa.net/detail/BIM-462496
Modern Language Association (MLA)
Barisic, Andriana…[et al.]. Accuracy of Self-Reported Breast Cancer Information among Women from the Ontario Site of the Breast Cancer Family Registry. Journal of Cancer Epidemiology No. 2012 (2012), pp.1-11.
https://search.emarefa.net/detail/BIM-462496
American Medical Association (AMA)
Barisic, Andriana& Glendon, Gord& Weerasooriya, Nayana& Andrulis, Irene L.& Knight, Julia A.. Accuracy of Self-Reported Breast Cancer Information among Women from the Ontario Site of the Breast Cancer Family Registry. Journal of Cancer Epidemiology. 2012. Vol. 2012, no. 2012, pp.1-11.
https://search.emarefa.net/detail/BIM-462496
Data Type
Journal Articles
Language
English
Notes
Includes bibliographical references
Record ID
BIM-462496