Patient Preference Assessment Reveals Disease Aspects Not Covered by Recommended Outcomes in Polymyositis and Dermatomyositis
Joint Authors
Alemo Munters, Li
Van Vollenhoven, Ronald F.
Alexanderson, Helene
Source
Issue
Vol. 2011, Issue 2011 (31 Dec. 2011), pp.1-5, 5 p.
Publisher
Hindawi Publishing Corporation
Publication Date
2011-04-12
Country of Publication
Egypt
No. of Pages
5
Main Subjects
Abstract EN
Objectives.
Polymyositis (PM) and dermatomyositis (DM) are characterized by impaired muscle function with a majority of patients developing sustained disability.
The aim of this study was to evaluate the patient’s individual priorities (patient preference) of disabilities most important to improve in PM/DM using the MacMaster Toronto Arthritis Patient Preference Disability Questionnaire (MACTAR), to correlate the MACTAR to myositis outcomes and to evaluate its test-retest reliability.
Methods.
Twenty-eight patients with PM/DM performed recommended outcomes as well as the MACTAR, which was performed twice with one week apart.
Results.
Sexual activity, walking, biking, social activities, and sleep constituted the predominating disabilities.
Seventy-two and 33% of the identified disabilities were not covered by items of the Health Assessment Questionnaire and the Myositis Activities Profile.
Correlations between the MACTAR and health-related quality of life measures were rs = −0.67–0.73, correlations with measures of activities of daily living and participation in society were rs = 0.51–0.60 with lower correlations for other outcomes.
Intraclass correlation (ICC) and weighted Kappa (Kw) coefficients were 0.83 and 0.68, respectively, for test-retest reliability of the MACTAR.
Conclusions.
The MACTAR interview had promising measurement properties and identified patient preference disabilities in PM/DM that were not covered by recommended outcomes.
American Psychological Association (APA)
Alemo Munters, Li& Van Vollenhoven, Ronald F.& Alexanderson, Helene. 2011. Patient Preference Assessment Reveals Disease Aspects Not Covered by Recommended Outcomes in Polymyositis and Dermatomyositis. ISRN Rheumatology،Vol. 2011, no. 2011, pp.1-5.
https://search.emarefa.net/detail/BIM-473544
Modern Language Association (MLA)
Alemo Munters, Li…[et al.]. Patient Preference Assessment Reveals Disease Aspects Not Covered by Recommended Outcomes in Polymyositis and Dermatomyositis. ISRN Rheumatology No. 2011 (2011), pp.1-5.
https://search.emarefa.net/detail/BIM-473544
American Medical Association (AMA)
Alemo Munters, Li& Van Vollenhoven, Ronald F.& Alexanderson, Helene. Patient Preference Assessment Reveals Disease Aspects Not Covered by Recommended Outcomes in Polymyositis and Dermatomyositis. ISRN Rheumatology. 2011. Vol. 2011, no. 2011, pp.1-5.
https://search.emarefa.net/detail/BIM-473544
Data Type
Journal Articles
Language
English
Notes
Includes bibliographical references
Record ID
BIM-473544