Integrating Interactive Web-Based Technology to Assess Adherence and Clinical Outcomes in Pediatric Sickle Cell Disease
Joint Authors
McGrady, Meghan E.
Barach, Ilana
Eastin, Adryan R.
Mitchell, Monica J.
Kalinyak, Karen A.
Crosby, Lori E.
Source
Issue
Vol. 2012, Issue 2012 (31 Dec. 2012), pp.1-8, 8 p.
Publisher
Hindawi Publishing Corporation
Publication Date
2012-06-04
Country of Publication
Egypt
No. of Pages
8
Main Subjects
Abstract EN
Research indicates that the quality of the adherence assessment is one of the best predictors for improving clinical outcomes.
Newer technologies represent an opportunity for developing high quality standardized assessments to assess clinical outcomes such as patient experience of care but have not been tested systematically in pediatric sickle cell disease (SCD).
The goal of the current study was to pilot an interactive web-based tool, the Take-Charge Program, to assess adherence to clinic visits and hydroxyurea (HU), barriers to adherence, solutions to overcome these barriers, and clinical outcomes in 43 patients with SCD age 6–21 years.
Results indicate that the web-based tool was successfully integrated into the clinical setting while maintaining high patient satisfaction (>90%).
The tool provided data consistent with the medical record, staff report, and/or clinical lab data.
Participants reported that forgetting and transportation were major barriers for adherence to both clinic attendance and HU.
A greater number of self-reported barriers (P<.01) and older age (P<.05) were associated with poorer clinic attendance and HU adherence.
In summary, the tool represents an innovative approach to integrate newer technology to assess adherence and clinical outcomes for pediatric patients with SCD.
American Psychological Association (APA)
Crosby, Lori E.& Barach, Ilana& McGrady, Meghan E.& Kalinyak, Karen A.& Eastin, Adryan R.& Mitchell, Monica J.. 2012. Integrating Interactive Web-Based Technology to Assess Adherence and Clinical Outcomes in Pediatric Sickle Cell Disease. Anemia،Vol. 2012, no. 2012, pp.1-8.
https://search.emarefa.net/detail/BIM-475957
Modern Language Association (MLA)
Crosby, Lori E.…[et al.]. Integrating Interactive Web-Based Technology to Assess Adherence and Clinical Outcomes in Pediatric Sickle Cell Disease. Anemia No. 2012 (2012), pp.1-8.
https://search.emarefa.net/detail/BIM-475957
American Medical Association (AMA)
Crosby, Lori E.& Barach, Ilana& McGrady, Meghan E.& Kalinyak, Karen A.& Eastin, Adryan R.& Mitchell, Monica J.. Integrating Interactive Web-Based Technology to Assess Adherence and Clinical Outcomes in Pediatric Sickle Cell Disease. Anemia. 2012. Vol. 2012, no. 2012, pp.1-8.
https://search.emarefa.net/detail/BIM-475957
Data Type
Journal Articles
Language
English
Notes
Includes bibliographical references
Record ID
BIM-475957