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Methodology of an International Study of People with Multiple Sclerosis Recruited through Web 2.0 Platforms : Demographics, Lifestyle, and Disease Characteristics
Joint Authors
Weiland, Tracey J.
Pereira, Naresh G.
Hadgkiss, Emily J.
Jelinek, George A.
van der Meer, Dania M.
Marck, Claudia H.
Source
Neurology Research International
Issue
Vol. 2013, Issue 2013 (31 Dec. 2013), pp.1-12, 12 p.
Publisher
Hindawi Publishing Corporation
Publication Date
2013-04-11
Country of Publication
Egypt
No. of Pages
12
Main Subjects
Abstract EN
Background.
Despite evidence of the potential importance of the role of health and lifestyle behaviours in multiple sclerosis (MS) outcomes, there has not been a significant focus on this area of research.
Aim.
We aimed to recruit an international sample of people with MS at baseline and over a five-year timeframe, examine their health and lifestyle behaviours, and determine the relationship of these behaviours to self-reported disability, disease activity, and quality of life.
Methods.
People with MS were recruited through web 2.0 platforms including interactive websites, social media, blogs, and forums and completed a comprehensive, multifaceted online questionnaire incorporating validated and researcher-derived tools.
Results.
2519 participants met inclusion criteria for this study.
This paper describes the study methodology in detail and provides an overview of baseline participant demographics, clinical characteristics, summary outcome variables, and health and lifestyle behaviours.
The sample described is unique due to the nature of recruitment through online media and due to the engagement of the group, which appears to be well informed and proactive in lifestyle modification.
Conclusion.
This sample provides a sound platform to undertake novel exploratory analyses of the association between a variety of lifestyle factors and MS outcomes.Erratum to “Methodology of an International Study of People with Multiple Sclerosis Recruited through Web 2.0 Platforms: Demographics, Lifestyle, and Disease Characteristics”dx.doi.org/10.1155/2013/129417
American Psychological Association (APA)
Hadgkiss, Emily J.& Jelinek, George A.& Weiland, Tracey J.& Pereira, Naresh G.& Marck, Claudia H.& van der Meer, Dania M.. 2013. Methodology of an International Study of People with Multiple Sclerosis Recruited through Web 2.0 Platforms : Demographics, Lifestyle, and Disease Characteristics. Neurology Research International،Vol. 2013, no. 2013, pp.1-12.
https://search.emarefa.net/detail/BIM-482413
Modern Language Association (MLA)
Hadgkiss, Emily J.…[et al.]. Methodology of an International Study of People with Multiple Sclerosis Recruited through Web 2.0 Platforms : Demographics, Lifestyle, and Disease Characteristics. Neurology Research International No. 2013 (2013), pp.1-12.
https://search.emarefa.net/detail/BIM-482413
American Medical Association (AMA)
Hadgkiss, Emily J.& Jelinek, George A.& Weiland, Tracey J.& Pereira, Naresh G.& Marck, Claudia H.& van der Meer, Dania M.. Methodology of an International Study of People with Multiple Sclerosis Recruited through Web 2.0 Platforms : Demographics, Lifestyle, and Disease Characteristics. Neurology Research International. 2013. Vol. 2013, no. 2013, pp.1-12.
https://search.emarefa.net/detail/BIM-482413
Data Type
Journal Articles
Language
English
Notes
Includes bibliographical references
Record ID
BIM-482413