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Conducting Molecular Epidemiological Research in the Age of HIPAA : A Multi-Institutional Case-Control Study of Breast Cancer in African-American and European-American Women
Joint Authors
Weltz, Christina
Rohan, Thomas E.
Fatone, Anne
Ciupak, Gregory L.
Tartter, Paul Ian
Demissie, Kitaw
Reilly, James
Zirpoli, Gary
Estabrook, Alison
Amend, Kandace L.
Roberts, Michelle
Feldman, Sheldon Marc
Raptis, George
Godbold, James
Li, Yulin
Pace, Benjamin W.
Hwang, Helena
Jandorf, Lina
Bovbjerg, Dana H.
Castaldi, Maria
Bandera, Elisa V.
Furberg, Helena
Davis, Warren
Sucheston, Lara
Sparano, Joseph A.
Kemeny, Margaret
Ambrosone, Christine B.
Pawlish, Karen S.
Yao, Song
Valdimarsdottir, Heiddis
Source
Issue
Vol. 2009, Issue 2009 (31 Dec. 2009), pp.1-15, 15 p.
Publisher
Hindawi Publishing Corporation
Publication Date
2009-10-25
Country of Publication
Egypt
No. of Pages
15
Main Subjects
Abstract EN
Breast cancer in African-American (AA) women occurs at an earlier age than in European-American (EA) women and is more likely to have aggressive features associated with poorer prognosis, such as high-grade and negative estrogen receptor (ER) status.
The mechanisms underlying these differences are unknown.
To address this, we conducted a case-control study to evaluate risk factors for high-grade ER- disease in both AA and EA women.
With the onset of the Health Insurance Portability and Accountability Act of 1996, creative measures were needed to adapt case ascertainment and contact procedures to this new environment of patient privacy.
In this paper, we report on our approach to establishing a multicenter study of breast cancer in New York and New Jersey, provide preliminary distributions of demographic and pathologic characteristics among case and control participants by race, and contrast participation rates by approaches to case ascertainment, with discussion of strengths and weaknesses.
American Psychological Association (APA)
Ambrosone, Christine B.& Ciupak, Gregory L.& Bandera, Elisa V.& Jandorf, Lina& Bovbjerg, Dana H.& Zirpoli, Gary…[et al.]. 2009. Conducting Molecular Epidemiological Research in the Age of HIPAA : A Multi-Institutional Case-Control Study of Breast Cancer in African-American and European-American Women. Journal of Oncology،Vol. 2009, no. 2009, pp.1-15.
https://search.emarefa.net/detail/BIM-504991
Modern Language Association (MLA)
Ambrosone, Christine B.…[et al.]. Conducting Molecular Epidemiological Research in the Age of HIPAA : A Multi-Institutional Case-Control Study of Breast Cancer in African-American and European-American Women. Journal of Oncology No. 2009 (2009), pp.1-15.
https://search.emarefa.net/detail/BIM-504991
American Medical Association (AMA)
Ambrosone, Christine B.& Ciupak, Gregory L.& Bandera, Elisa V.& Jandorf, Lina& Bovbjerg, Dana H.& Zirpoli, Gary…[et al.]. Conducting Molecular Epidemiological Research in the Age of HIPAA : A Multi-Institutional Case-Control Study of Breast Cancer in African-American and European-American Women. Journal of Oncology. 2009. Vol. 2009, no. 2009, pp.1-15.
https://search.emarefa.net/detail/BIM-504991
Data Type
Journal Articles
Language
English
Notes
Includes bibliographical references
Record ID
BIM-504991