A Patient-Based Needs Assessment for Living Well with Parkinson Disease : Implementation via Nominal Group Technique
Joint Authors
Kleiner-Fisman, Galit
Gryfe, Pearl
Naglie, Gary
Source
International Journal of Biomedical Imaging
Issue
Vol. 2013, Issue 2013 (31 Dec. 2013), pp.1-6, 6 p.
Publisher
Hindawi Publishing Corporation
Publication Date
2013-02-17
Country of Publication
Egypt
No. of Pages
6
Main Subjects
Abstract EN
Background.
Parkinson’s disease (PD) is a neurodegenerative condition with complex subtleties, making it challenging for physicians to fully inform their patients.
Given that approximately 50% of Americans access the Internet for health information, the development of a multimedia, web-based application emphasizing targeted needs of people with Parkinson’s disease (PwP) has the potential to change patient’s lives.
Objectives.
To determine what information PwP perceive could enhance their quality of life.
Methods.
Group sessions utilizing nominal group technique (NGT) were conducted.
Participants were asked “what information do you want to know about that would help you live well with PD?” Silent generation of ideas preceded discussion followed by anonymous ranking of items.
A “summary score” (sum of rank × frequency) was calculated.
Results.
36 individual items were collapsed into 9 categories.
Coping with emotions, changing relationships, and social implications of PD were ranked as most important.
Financial supports and skills for self-advocacy were also highly ranked.
Conclusions.
Qualitative research methodology was utilized to determine the unmet needs of PwP.
Results of this survey will inform the development of a patient-oriented, online resource, the goal will be to provide information and strategies to improve symptom management, reduce disability and address all relevant concerns important to those affected by PD.
American Psychological Association (APA)
Kleiner-Fisman, Galit& Gryfe, Pearl& Naglie, Gary. 2013. A Patient-Based Needs Assessment for Living Well with Parkinson Disease : Implementation via Nominal Group Technique. International Journal of Biomedical Imaging،Vol. 2013, no. 2013, pp.1-6.
https://search.emarefa.net/detail/BIM-512809
Modern Language Association (MLA)
Kleiner-Fisman, Galit…[et al.]. A Patient-Based Needs Assessment for Living Well with Parkinson Disease : Implementation via Nominal Group Technique. International Journal of Biomedical Imaging No. 2013 (2013), pp.1-6.
https://search.emarefa.net/detail/BIM-512809
American Medical Association (AMA)
Kleiner-Fisman, Galit& Gryfe, Pearl& Naglie, Gary. A Patient-Based Needs Assessment for Living Well with Parkinson Disease : Implementation via Nominal Group Technique. International Journal of Biomedical Imaging. 2013. Vol. 2013, no. 2013, pp.1-6.
https://search.emarefa.net/detail/BIM-512809
Data Type
Journal Articles
Language
English
Notes
Includes bibliographical references
Record ID
BIM-512809