Health-Related Quality of Life in Children and Adolescents with Celiac Disease : From the Perspectives of Children and Parents
Joint Authors
Fälth-Magnusson, Karin
Johansson, AnnaKarin
Byström, Ing-Marie
Hollén, Elisabet
Source
Gastroenterology Research and Practice
Issue
Vol. 2012, Issue 2012 (31 Dec. 2012), pp.1-6, 6 p.
Publisher
Hindawi Publishing Corporation
Publication Date
2012-04-03
Country of Publication
Egypt
No. of Pages
6
Main Subjects
Abstract EN
Aim.
To examine how celiac children and adolescents on gluten-free diet valued their health-related quality of life, and if age and severity of the disease at onset affected the children’s self-valuation later in life.
We also assessed the parents’ valuation of their child’s quality of life.
Methods.
The DISABKIDS Chronic generic measure, short versions for both children and parents, was used on 160 families with celiac disease.
A paediatric gastroenterologist classified manifestations of the disease at onset retrospectively.
Results.
Age or sex did not influence the outcome.
Children diagnosed before the age of five scored higher than children diagnosed later.
Children diagnosed more than eight years ago scored higher than more recently diagnosed children, and children who had the classical symptoms of the disease at onset scored higher than those who had atypical symptoms or were asymptomatic.
The parents valuated their children’s quality of life as lower than the children did.
Conclusion.
Health-related quality of life in treated celiac children and adolescents was influenced by age at diagnosis, disease severity at onset, and years on gluten-free diet.
The disagreement between child-parent valuations highlights the importance of letting the children themselves be heard about their perceived quality of life.
American Psychological Association (APA)
Byström, Ing-Marie& Hollén, Elisabet& Fälth-Magnusson, Karin& Johansson, AnnaKarin. 2012. Health-Related Quality of Life in Children and Adolescents with Celiac Disease : From the Perspectives of Children and Parents. Gastroenterology Research and Practice،Vol. 2012, no. 2012, pp.1-6.
https://search.emarefa.net/detail/BIM-513809
Modern Language Association (MLA)
Byström, Ing-Marie…[et al.]. Health-Related Quality of Life in Children and Adolescents with Celiac Disease : From the Perspectives of Children and Parents. Gastroenterology Research and Practice No. 2012 (2012), pp.1-6.
https://search.emarefa.net/detail/BIM-513809
American Medical Association (AMA)
Byström, Ing-Marie& Hollén, Elisabet& Fälth-Magnusson, Karin& Johansson, AnnaKarin. Health-Related Quality of Life in Children and Adolescents with Celiac Disease : From the Perspectives of Children and Parents. Gastroenterology Research and Practice. 2012. Vol. 2012, no. 2012, pp.1-6.
https://search.emarefa.net/detail/BIM-513809
Data Type
Journal Articles
Language
English
Notes
Includes bibliographical references
Record ID
BIM-513809