Information Experiences and Needs in Patients with Pulmonary Arterial Hypertension or Chronic Thromboembolic Pulmonary Hypertension
المؤلفون المشاركون
Ivarsson, Bodil
Ekmehag, Björn
Sjöberg, Trygve
المصدر
العدد
المجلد 2014، العدد 2014 (31 ديسمبر/كانون الأول 2013)، ص ص. 1-8، 8ص.
الناشر
Hindawi Publishing Corporation
تاريخ النشر
2014-08-14
دولة النشر
مصر
عدد الصفحات
8
التخصصات الرئيسية
الملخص EN
Background.
Pulmonary arterial hypertension (PAH) and chronic thromboembolic pulmonary hypertension (CTEPH) are fatal, noncurable, but treatable diseases that strongly affect the patients.
Objective.
To describe patients’ experience of information relating to PAH or CTEPH.
Methods.
A qualitative method using content analysis was applied.
Seventeen patients (thirteen women and four men) aged 28–73 years from a regional PAH centre were individually interviewed.
Results.
Three categories that describe patients’ experiences of information emerged: handling of information, struggling with feelings that also affect others, and vulnerability associated with uncertainty.
The patients would have welcomed more information to relatives from the healthcare professionals.
Shortcomings on communicating a prognosis were experienced.
The mediated information and knowledge gave the patients insight into physical or psychosocial problems.
Mutual exchange of information between patients and healthcare professionals were marred by different experiences of attitudes, behaviour, and ownership.
Conclusions.
In the future, healthcare organizations must struggle to achieve a holistic healthcare by making it more person-centred, and they must also promote cooperation between PAH centres and local healthcare providers.
It is essential to determine the most appropriate and valuable path of information and communication and, thereby, the most cost-effective management of PAH or CTEPH.
نمط استشهاد جمعية علماء النفس الأمريكية (APA)
Ivarsson, Bodil& Ekmehag, Björn& Sjöberg, Trygve. 2014. Information Experiences and Needs in Patients with Pulmonary Arterial Hypertension or Chronic Thromboembolic Pulmonary Hypertension. Nursing Research and Practice،Vol. 2014, no. 2014, pp.1-8.
https://search.emarefa.net/detail/BIM-1046853
نمط استشهاد الجمعية الأمريكية للغات الحديثة (MLA)
Ivarsson, Bodil…[et al.]. Information Experiences and Needs in Patients with Pulmonary Arterial Hypertension or Chronic Thromboembolic Pulmonary Hypertension. Nursing Research and Practice Vol. 2014, no. 2014 (2013), pp.1-8.
https://search.emarefa.net/detail/BIM-1046853
نمط استشهاد الجمعية الطبية الأمريكية (AMA)
Ivarsson, Bodil& Ekmehag, Björn& Sjöberg, Trygve. Information Experiences and Needs in Patients with Pulmonary Arterial Hypertension or Chronic Thromboembolic Pulmonary Hypertension. Nursing Research and Practice. 2014. Vol. 2014, no. 2014, pp.1-8.
https://search.emarefa.net/detail/BIM-1046853
نوع البيانات
مقالات
لغة النص
الإنجليزية
الملاحظات
Includes bibliographical references
رقم السجل
BIM-1046853
قاعدة معامل التأثير والاستشهادات المرجعية العربي "ارسيف Arcif"
أضخم قاعدة بيانات عربية للاستشهادات المرجعية للمجلات العلمية المحكمة الصادرة في العالم العربي
تقوم هذه الخدمة بالتحقق من التشابه أو الانتحال في الأبحاث والمقالات العلمية والأطروحات الجامعية والكتب والأبحاث باللغة العربية، وتحديد درجة التشابه أو أصالة الأعمال البحثية وحماية ملكيتها الفكرية. تعرف اكثر