Information Experiences and Needs in Patients with Pulmonary Arterial Hypertension or Chronic Thromboembolic Pulmonary Hypertension
Joint Authors
Ivarsson, Bodil
Ekmehag, Björn
Sjöberg, Trygve
Source
Issue
Vol. 2014, Issue 2014 (31 Dec. 2013), pp.1-8, 8 p.
Publisher
Hindawi Publishing Corporation
Publication Date
2014-08-14
Country of Publication
Egypt
No. of Pages
8
Main Subjects
Abstract EN
Background.
Pulmonary arterial hypertension (PAH) and chronic thromboembolic pulmonary hypertension (CTEPH) are fatal, noncurable, but treatable diseases that strongly affect the patients.
Objective.
To describe patients’ experience of information relating to PAH or CTEPH.
Methods.
A qualitative method using content analysis was applied.
Seventeen patients (thirteen women and four men) aged 28–73 years from a regional PAH centre were individually interviewed.
Results.
Three categories that describe patients’ experiences of information emerged: handling of information, struggling with feelings that also affect others, and vulnerability associated with uncertainty.
The patients would have welcomed more information to relatives from the healthcare professionals.
Shortcomings on communicating a prognosis were experienced.
The mediated information and knowledge gave the patients insight into physical or psychosocial problems.
Mutual exchange of information between patients and healthcare professionals were marred by different experiences of attitudes, behaviour, and ownership.
Conclusions.
In the future, healthcare organizations must struggle to achieve a holistic healthcare by making it more person-centred, and they must also promote cooperation between PAH centres and local healthcare providers.
It is essential to determine the most appropriate and valuable path of information and communication and, thereby, the most cost-effective management of PAH or CTEPH.
American Psychological Association (APA)
Ivarsson, Bodil& Ekmehag, Björn& Sjöberg, Trygve. 2014. Information Experiences and Needs in Patients with Pulmonary Arterial Hypertension or Chronic Thromboembolic Pulmonary Hypertension. Nursing Research and Practice،Vol. 2014, no. 2014, pp.1-8.
https://search.emarefa.net/detail/BIM-1046853
Modern Language Association (MLA)
Ivarsson, Bodil…[et al.]. Information Experiences and Needs in Patients with Pulmonary Arterial Hypertension or Chronic Thromboembolic Pulmonary Hypertension. Nursing Research and Practice Vol. 2014, no. 2014 (2013), pp.1-8.
https://search.emarefa.net/detail/BIM-1046853
American Medical Association (AMA)
Ivarsson, Bodil& Ekmehag, Björn& Sjöberg, Trygve. Information Experiences and Needs in Patients with Pulmonary Arterial Hypertension or Chronic Thromboembolic Pulmonary Hypertension. Nursing Research and Practice. 2014. Vol. 2014, no. 2014, pp.1-8.
https://search.emarefa.net/detail/BIM-1046853
Data Type
Journal Articles
Language
English
Notes
Includes bibliographical references
Record ID
BIM-1046853